More Than A Status Update

With Cancer Can Kiss My Skates taking on a life of it’s own, we thought it appropriate to give it a blog of it’s own.

I posted the first post last night and it’s had more views than ANY of my posts here.

Join us over there for a look at life on skates!

via More Than A Status Update

 

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Well That Was Close

When I was trying to figure out what I was going to do for employment after the elementary school, I spent a lot of time talking with God. He made it abundantly clear I was to remain as a sub for the rest of the school year.

I’ve talked recently about applying for, and not getting, a couple jobs within the school system and my weird comfort with it.

Then yesterday, April 4, I’m walking through Walmart and I hear, “Just who do you think you are not supporting your children? Is this really the life you want for them? Both McDonald’s and Walmart would likely hire you on the spot; you’d best apply soon if you want to pay your rent in three weeks.”

Over and over this message played in my head all day yesterday. I was so beat up by the end of the day that anybody who crossed paths with me immediately saw that something was wrong.

As they day wore on, my resolve wore down. Maybe I didn’t hear God; maybe (and much more likely) I’m just lazy. Maybe the voice telling me to sub was actually the enemy and THIS was now God’s voice telling me to get off my butt and be a productive member of society.

I opened the unemployment services website, I started looking for postings, I conceded that working full time this summer would kill me. I started looking for a job.

This morning, after I hear alarm clocks go off in each of the boys’ rooms, my phone rang. It was the local high school calling for a full day of work as a special education paraprofessional.

I talk with the people at the school and get two more kitchen days at the high school (one in May and one in June), and am told to I’ll definitely be called for future dates.

GAH

Ya, God is that awesome. He knows exactly how many days off I can take, He knows exactly how many hours I must work. HE.WILL.PROVIDE.

I have no idea how many times this will need to be drilled into my head…and my job is to praise Him through it all.

I know I’m not lazy, I’m actually a very hard worker. I’m a fast learner and have a great personality. God WILL provide.

Thank You Father for loving me beyond all comprehension. For giving me opportunities to shout praise to You through it all.
Even when I know how much I love my children and would do anything within my power to care for them, I am confident there is nothing that is not in Your reach; nothing beyond Your grasp.
I will continue to ask the big prayers, to follow faithfully again and again.
Thank You Father.

Amen

Speechless

In 92 days I will skate my second marathon.

In that time, 10, 396 mothers, daughters, sisters, best friends, grandmothers, aunts, granddaughters, and cousins will die of Metastatic Breast Cancer (MBC) in the USA. JUST THE USA…

~~~~~~~
Well, this is not how this post was gonna go. I mathed (as Katie calls it) the numbers to make a point.

Then I re-mathed…and again, and texted Katie, and recalculated…

Holy shit.

I still have this pit in my stomach that feels like I’m going to puke.

For the first time in I don’t know how long, those numbers scare me.

It’s not like I didn’t know that 113 people die every day of MBC…but to put a number on a time line like that made my heart sick.

We are raising money for MBC research and a local charity…and suddenly it’s not enough. Suddenly, I feel useless and unworthy. I cannot save 10, 396 people.

But maybe I can save one.

Maybe, I can save two little boys from having to say goodbye to their single mom…a daughter from losing the one person she can count on to tell her like it is…a friend from the reality she has prayed against from day one…a mother from losing her favorite daughter…a sister…an aunt…a cousin…a grandma…

Maybe, I can be the voice for those I can’t save…the ones who are too sick to shout…those too busy trying a new drug, and another new one, and another experimental treatment…

I will be posting fundraising links in the coming days. Please join me in supporting those who are fighting for every breath, every step, every hockey practice, every bowling league, every football throw, every inline skate…for me and my friends. Shout with me for those who are dying for a cure.

My heart is so broken right now, and I’m throwing star fish back into the ocean…I can’t save them all, but I can save one at a time…I can raise one dollar at a time.

I CAN make a difference.

Will you help? Will you join me?

Can You Just Not…

I found out this morning that a person I know is back at Mayo for a work up…might be a recurrence of he brain cancer he had like 10 years ago (maybe not that many but enough to get passed the ‘all clear’ date that some cancers actually get).

I have the absolute heaviness over my entire body. Not just an aching heart; my body feels overwhelmingly heavy…like a weighted blanket, over my entire being. A fist around my heart, holding it hostage…or securely; I can’t tell. I know when I was sick and one of my hockey families gifted me with a weighted blanket, it was the most amazing gift EVER!

Maybe this is just God covering me…protecting me…forcing me to slow down, to not panic. All I know is that I hate cancer…and I am angry that his cancer might be back. I am angry and sad and frustrated.

The reality of ‘after cancer’ is that every diagnosis I hear about, every recurrence for a friend of acquaintance is devastating, numbing, and oh so hard.

God,

I know You work everything for your good for those who believe, but what about those who don’t? How are they supposed to see your good works when a man of God has a recurrence of cancer that for all intents and purposes he had already beat once?
How do I explain not being afraid of cancer anymore because the damage in my life has already been done so anything after this is chicken feed?

I know I’m not strong enough to deal with all these emotions, and am so thankful for Your grace. Guide me through this period of waiting for news from the man I know and from Beth’s family. (Beth’s husband posted on October 31 that it is only a matter of days for her).

Lord, this disease has so many faces and so many outcomes. I ask for every person hearing those words for the first time not turn away from You; that they come to find strength and peace in You.

Amen

Hockey and Dates

Today I was gifted four tickets to a University of North Dakota Fighting Hawks hockey game. As a huge hockey fan, I cannot even begin to explain my delight at this. I have never been to a college level hockey game. Unfortunately, my boys cannot join me so I am taking friends.

While I was at the grocery store with my youngest son after school today we were joking about me looking for a date. He even asked a friend of ours and our checkout guy if they would be my date. He did not seem to care that our friend is married and the checkout guy has a girlfriend. Too funny.

At one point we were standing by a store employee who was giving out free brownie sundaes and he was still trying to convince me I needed a date, and he would find me one. He even asked the guy at the meat counter…he declined as it is his mother’s birthday tomorrow.

The lady said to him, “Aww, he just is worried about his Mama and wants her to be happy.”

I responded that he worried enough when I was sick, he should never have to worry about his Mama ever again.

Then he caught my eye…

A look of terror and dread and anguish flashed through his whole body. It rocked me to the core.

“Ya, I worried enough, I never want to worry like that again” was his reply as he moved closer and put his head against my arm and looked up at me.

“That’s legit buddy; I’m sorry.” I wrapped my free arm around him as we walked away, his head still leaned against me. What else was I supposed to say, what could I say? We walked like that in silence for a few minutes through the store, eventually easing back into conversation.

For a minute though, I saw it. I saw cancer in my young son’s eyes. I could see it written on his heart. He is nine years old. In a split second, I watched him age a hundred years. I watched him become a man, with a little boy’s broken heart.

Cancer will be a part of who my boys become as young men, as partners, as fathers, as leaders. I am so glad I get to guide them and raise them up!

Lord,

That fear I saw tonight…it was the first time I’ve seen it in a long time. I am so grateful that he had that moment with me, so he could be validated and comforted.
As we move further away from cancer and as I raise these young men up into Godly men; give me the patience, the strength, and the integrity to do it right.

Amen

What To Say

Another warrior discovered her cancer had metastasized to her bones a few weeks ago.  Her doctor ordered a brain MRI and she received the results today that she has three lesions on her brain.

I do not even know what to say. I am sorry sounds like a death sentence. When I think of what I would want to hear, I cannot even imagine.

I think the most logical, honest, heartfelt response for me would be, “Oh Fuck, now what?”

Seriously…because for women who have breast cancer that metastasizes, it means life-long treatment. It means facing the unknown and every fear you have faced since your initial diagnosis has been realized.

One lady said she feels such peace now. She had spent years wondering if and when it would show up again; now she knows and can make a treatment plan and move forward.

I would like to think I would also feel that way; but I am not that strong. Oh, I would look that strong on the outside, of that I am sure. On the inside, and at my Mommy’s house though, I would be a mess. A puddle of mush.

And when it was time to get to work, I would get to work. Maybe I would be like that. I am glad I do not have to find out.

Being healed has brought me a peace I had before I ever heard that ugly word; Cancer. I am different though. I no longer am able to be naive about my mortality. I am no longer willing to let simple symptoms go for more than a couple of weeks.

What if I had gone to the doctor when I first felt pain in my left breast? Would that have changed my treatment plan or outcome? I never want to be that close to death ever again. So from now on, if I have a pain, a twinge, a feeling something is not right, I will get it looked at sooner rather than later.

I may be healed yet I still take medications on a daily basis. My body tried to kill me once, I will do everything in my power, to not let that happen again. As I still have one natural breast left; I am still at risk.

My risk for a new primary cancer in my right breast is pretty slim; I get that. I also get that it was pretty much a fluke of nature (if I believed in such a thing) that I had it in the first place.

So difficult to put yourself in the shoes of somebody receiving such devastating news; I am blessed that I can though. I am thankful I know her well enough to ask what now and have her know she can share the details with me, they will not scare me away and I will not tell her to eat more carrots.

To my stage IV warriors, my friends; this sucks, and I’m coming along for the ride. Hang in there and you do you.

Lord,

I pray for all the metavivors out there, those I know and the ones I don’t. I pray for their medical team to be the best, I pray that the treatment decisions are sound and successful. I ask for relief from any pain or anxiety as they live their new life.
I ask for a miracle, for radical healing as only You can do.
Lord give me strength and courage to continue to grow these friendships and not back away. To not fade.
I praise You for my healing, God. For giving my another shot at life. For allowing me to serve you with grace and wisdom.
Amen

Newness

During periods of rapid growth, there is physical, emotional, and often spiritual pain.

Recently my friend invited me to start rollerblading in the mornings with her. She found an amazing deal on some decent skates and I agreed. She does this in the mornings…I am not a morning person.

The first day, I puked. I told her I would do it if she wanted to come and get me. She rings my doorbell to wake me up and off we go. I should have eaten breakfast because exerting myself on an empty stomach was not a good idea. I rollerbladed 4.65 miles that day.

The next day I skated 3.67 miles and my youngest son joined us. We had less time due to having the young one with us, and I did not push myself as hard as I had the day before; but I still skated.

Thankfully we had the next two days off (Wednesday morning it was raining and Thursday morning the boys had to be at golf at 8 am). Today we were out there again and I did another 3.67 miles. I was slower, so less winded yet still active. Her youngest son came with us today so the pace was slow again but being out there is better than just going back to sleep in the early morning hours (do NOT tell her I said that).

Monday when she rang my doorbell I was still sleeping and ran down stairs in my bathrobe to open the door. Tuesday I was awake and had time to grab some cereal. Today, my skates were on and I skated out of the house when she got her eating a bowl of cereal. She commented that it was the first time she’d ever seen anybody rollerblading while eating cereal…I told her to take a picture, it lasts longer. I am so not a morning person.

The one thing she had shared with me before was that she uses this time to pray. I know people often pray while dying so I did not find this hard to believe.

What I did not know, was how present God is out there on that trail. The Holy Spirit is very active. The first day, I was moved by how much the physical growth is akin to spiritual growth.

While I am out there skating and remembering what it feels like to taste your lungs, I was struck by how difficult this period of growth has been for me. My lungs are scarred from radiation and my endurance is so diminished due to the scarring plus chemotherapy, plus multiple surgeries over the last three years.

The only way to get back on my feet…is to actually be on my feet. My friend gets that and is willing to put up with my whining, pouting, and growly face in the early morning hours to keep me on my feet.

I am struck by how difficult my spiritual journey has been and how I am willing to go through the difficult periods usually with less whining than I am doing now.

As the Holy Spirit fills me up, I am being used as the hands and feet of God. I am reminded often just how loved I am. I am still learning how to get through the tough days in one piece.

When I start to question my prayer requests I try to focus on the fact that my Father loves me perfectly and that I would do anything within my power to fill my own children’s requests and I long for them to come to me with requests ranging from seemingly impossible to run of the mill.

Matthew 7: 9-11

“You parents—if your children ask for a loaf of bread, do you give them a stone instead? 10 Or if they ask for a fish, do you give them a snake? Of course not! 11 So if you sinful people know how to give good gifts to your children, how much more will your heavenly Father give good gifts to those who ask him.

How can I even doubt that God wants to hear my requests when I so cherish every request made by my children. So I ask my Father for so much and He answers each prayer accordingly. When I begin to think I am undeserving, I am reminded:

Luke 12: 27 – 32

27 “Look at the lilies and how they grow. They don’t work or make their clothing, yet Solomon in all his glory was not dressed as beautifully as they are. 28 And if God cares so wonderfully for flowers that are here today and thrown into the fire tomorrow, he will certainly care for you. Why do you have so little faith?

29 “And don’t be concerned about what to eat and what to drink. Don’t worry about such things. 30 These things dominate the thoughts of unbelievers all over the world, but your Father already knows your needs. 31 Seek the Kingdom of God above all else, and he will give you everything you need.

32 “So don’t be afraid, little flock. For it gives your Father great happiness to give you the Kingdom.

It gives me great pleasure to meet the needs and wants of my children; and I am far from a perfect parent. I can only imagine the sincere love of God as He provides for each of His children.

While our financial struggle is still so suppressing, I remember that God provides. I am reminded that I am not living in poverty as punishment for anything I have done; that this is merely a season of my life and as the season changes, so will our circumstances.

If you would add us to your prayer list, I am grateful.

Dear Lord,
As the seasons change, I must remember that each plant in the valley grows at the pace You have designed. As I grow spiritually, I am thankful that my emotional growth has kept pace. I understand my financial situation is also a season I must endure and give my trust to you. With each glide of the rollerblade, help me to remember that each outing is one closer to the physical freedom that I long for. 
I give you thanks for those in my life who remind me that this season of abject poverty is not a form of punishment from You; that You love me completely and perfectly. They remind me that I am worthy of nice things and that You give us community to help each other during times such as these. 
When my heart is open, You speak to me and I am listening. 
Give me the resolve to continue through this dark valley, because I know You are with me.
God, C would like a trip to Northern Air or an afternoon of Go-Karting and mini golf. K would like an evening out at a nice restaurant. You know these are the prayers that I have difficulty sharing with others as they seem selfish…I also know that You know their hearts and know that my children are far from selfish…and I should never have to apologize for their sincere prayers. 

Amen